Written questions by Anderson.

What steps his Department is taking to help increase (a) awareness and (b) understanding of Ehlers Danlos Syndrome among (i) GPs and (ii) NHS staff.

A primary goal of the Complex Ehlers-Danlos Syndrome (EDS) Service, which is commissioned by NHS England, is to educate clinicians about the diagnosis, investigation, and management of patients with complex and atypical forms of EDS. While the service focuses on rare condition types and accepts referrals from secondary and tertiary care, its development of guidelines and educational initiatives also benefits general practitioners (GPs), who are on the front line of patient care. Additionally, other resources like the EDS GP Toolkit, developed by the Royal College of General Practitioners and Ehlers-Danlos Support UK, is specifically designed to provide information and guidance to GPs.Integrated care boards (ICBs) have a statutory responsibility to commission services which meet the needs of their local population, including for those with EDS. It is the responsibility of ICBs, working with clinicians, service users, and patient groups, to develop services and care pathways that meet patients’ needs.EDS is diagnosed by a combination of GPs, specialist clinicians, and the national diagnostic service for rare types. GPs can diagnose common types like hypermobility EDS and may refer to a specialist if needed. We are investing in additional capacity to deliver appointments to help bring waiting lists and times down. The Elective Reform Plan, published in January 2025, sets out the specific productivity and reform efforts needed to return to the constitutional standard, that 92% of patients to wait no longer than 18 weeks from referral to treatment, by March 2029.Additionally, the shifts outlined in our 10-Year Health Plan will free up hospital-based consultants’ time by shifting care from hospitals to communities, utilising digital technology to reduce administrative burdens, and promoting prevention to reduce the onset and severity of conditions that lead to hospital admissions. This includes expanding community-based services, employing artificial intelligence for productivity, developing integrated neighbourhood health teams, and investing in digital tools and data. These shifts will allow specialists to focus on more complex cases of EDS, enabling earlier identification and management, and improved patient outcomes.The Department funds research on health and social care through the National Institute for Health and Care Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health and care, including EDS and any related conditions. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality.

What steps he is taking to improve training for medical staff on postural orthostatic tachycardia syndrome.

Postural tachycardia syndrome (PoTS) is diagnosed by a combination of general practitioners (GPs) and specialist clinicians. GPs can diagnose PoTS in many cases but, if they are unsure of symptoms, or if symptoms are complex, they will refer patients to specialists for diagnosis.We are investing in additional capacity to deliver appointments to help bring waiting lists and times down. The Elective Reform Plan, published in January 2025, sets out the specific productivity and reform efforts needed to return to the constitutional standard that 92% of patients wait no longer than 18 weeks from referral to treatment, by March 2029.Additionally, the shifts outlined in our 10-Year Health Plan will free up hospital-based consultants’ time by shifting care from hospitals to communities, utilising digital technology to reduce administrative burdens, and promoting prevention to reduce the onset and severity of conditions that lead to hospital admissions. This includes expanding community-based services, employing artificial intelligence for productivity, developing integrated neighbourhood health teams, and investing in digital tools and data. These shifts will allow specialists to focus on more complex cases of PoTS, enabling earlier identification and management, and improved patient outcomes.By shifting care into the community through Neighbourhood Health Services, promoting integrated, multidisciplinary models of care and expanding personalised care plans, as outlined in the 10-Year Health Plan, we will ensure that people with conditions like PoTS receive more timely and accessible support closer to home.As part of their continuing professional development, medical staff are responsible for updating their clinical knowledge with new research and guidance, ensuring they can accurately recognise and treat conditions such as PoTS.The National Institute for Care Excellence has published a clinical knowledge summary on blackouts and syncope, which details how clinicians should assess and diagnose PoTS. Additionally, the Syncope Toolkit, developed by the Royal College of General Practitioners, is a resource designed to help GPs manage patients with syncope and related disorders, including PoTS.

What steps his Department is taking to reduce waiting times for the diagnosis of Ehlers Danlos Syndrome.

A primary goal of the Complex Ehlers-Danlos Syndrome (EDS) Service, which is commissioned by NHS England, is to educate clinicians about the diagnosis, investigation, and management of patients with complex and atypical forms of EDS. While the service focuses on rare condition types and accepts referrals from secondary and tertiary care, its development of guidelines and educational initiatives also benefits general practitioners (GPs), who are on the front line of patient care. Additionally, other resources like the EDS GP Toolkit, developed by the Royal College of General Practitioners and Ehlers-Danlos Support UK, is specifically designed to provide information and guidance to GPs.Integrated care boards (ICBs) have a statutory responsibility to commission services which meet the needs of their local population, including for those with EDS. It is the responsibility of ICBs, working with clinicians, service users, and patient groups, to develop services and care pathways that meet patients’ needs.EDS is diagnosed by a combination of GPs, specialist clinicians, and the national diagnostic service for rare types. GPs can diagnose common types like hypermobility EDS and may refer to a specialist if needed. We are investing in additional capacity to deliver appointments to help bring waiting lists and times down. The Elective Reform Plan, published in January 2025, sets out the specific productivity and reform efforts needed to return to the constitutional standard, that 92% of patients to wait no longer than 18 weeks from referral to treatment, by March 2029.Additionally, the shifts outlined in our 10-Year Health Plan will free up hospital-based consultants’ time by shifting care from hospitals to communities, utilising digital technology to reduce administrative burdens, and promoting prevention to reduce the onset and severity of conditions that lead to hospital admissions. This includes expanding community-based services, employing artificial intelligence for productivity, developing integrated neighbourhood health teams, and investing in digital tools and data. These shifts will allow specialists to focus on more complex cases of EDS, enabling earlier identification and management, and improved patient outcomes.The Department funds research on health and social care through the National Institute for Health and Care Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health and care, including EDS and any related conditions. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality.

What steps he is taking to improve maternity safety in hospitals.

The Secretary of State for Health and Social Care has announced a rapid, national, independent Investigation into National Health Service maternity and neonatal services, chaired by Baroness Amos, to understand the systemic issues behind why so many women, babies and families experience unacceptable care.The Investigation will look into maternity and neonatal services in 14 NHS trusts alongside reviewing the maternity and neonatal system, bringing together the findings of past reviews into one clear national set of actions.The Government is also establishing a National Maternity and Neonatal Taskforce. The Taskforce will be chaired by the Secretary of State and will take forward the recommendations of the Investigation, forming them into a national action plan to drive improvements across maternity and neonatal care.Alongside this, the Government is taking immediate action to boost accountability and safety as part of its mission to build an NHS fit for the future – including measures to hold the system to account, a system to better identify safety concerns, rolling out a programme to all trusts to tackle discrimination and racism, and new best practice standards in maternal mortality.

What recent discussions he has had with deaf people on their experience of (a) the healthcare system and (b) social care.

Both my Rt Hon. Friend, the Secretary of State for Health and Social Care, and I meet regularly with external sector partners on a variety of issues, including those who represent the deaf community.In May 2025, my Rt Hon. Friend attended a constituency event marking Deaf Awareness Week, which was held by the Empowering Deaf Society. At the event, my Rt Hon. Friend heard from deaf people about the challenges faced by their community. Further information on the event is available at the following link:https://liamodell.com/2025/05/07/wes-streeting-health-secretary-social-care-deaf-bsl-british-sign-language-parliament-empowering-deaf-society-stephen-timms-disabled-people-deaf-awareness-week/

What steps he is taking to improve (a) treatment and (b) support for children with cancer.

The Department is committed to maximising the United Kingdom’s potential to lead the world in clinical research, with the aim of ensuring that all patients, including children and young people with cancer, have access to cutting-edge clinical trials and innovative, lifesaving treatments. The National Institute for Health and Care Research, funded by the Department, funds research and research infrastructure, which supports patients and the public to participate in high-quality research, including cancer clinical trials.The Department is committed to improving outcomes and patient experience for children and young people with cancer. NHS England has published service specifications that set out the service standards required of all providers of children and young people’s cancer services. The requirements include ensuring that every patient has access to specialist care and reducing physical, emotional, and psychological morbidity arising from treatment for childhood cancer. The specifications are available at the following link:https://www.england.nhs.uk/commissioning/spec-services/npc-crg/group-b/b05/ On 4 February 2025, the Department relaunched the Children and Young People Cancer Taskforce to identify tangible ways to improve outcomes and experiences for young cancer patients. The taskforce will explore opportunities for improvement, including detection and diagnosis, genomic testing and treatment, research and innovation, and patient experience. The taskforce will also ensure that the unique needs of children and young people with cancer are carefully considered as part of the National Cancer Plan for England.

What recent steps he is taking to support parents who have to leave work following a child’s diagnosis of cancer.

The Department is committed to maximising the United Kingdom’s potential to lead the world in clinical research, with the aim of ensuring that all patients, including children and young people with cancer, have access to cutting-edge clinical trials and innovative, lifesaving treatments. The National Institute for Health and Care Research, funded by the Department, funds research and research infrastructure, which supports patients and the public to participate in high-quality research, including cancer clinical trials.The Department is committed to improving outcomes and patient experience for children and young people with cancer. NHS England has published service specifications that set out the service standards required of all providers of children and young people’s cancer services. The requirements include ensuring that every patient has access to specialist care and reducing physical, emotional, and psychological morbidity arising from treatment for childhood cancer. The specifications are available at the following link:https://www.england.nhs.uk/commissioning/spec-services/npc-crg/group-b/b05/ On 4 February 2025, the Department relaunched the Children and Young People Cancer Taskforce to identify tangible ways to improve outcomes and experiences for young cancer patients. The taskforce will explore opportunities for improvement, including detection and diagnosis, genomic testing and treatment, research and innovation, and patient experience. The taskforce will also ensure that the unique needs of children and young people with cancer are carefully considered as part of the National Cancer Plan for England.

Whether he has had recent discussions with families who have experienced baby loss on their experience of (a) maternity services and (b) other healthcare provision.

The Secretary of State for Health and Social Care has held a series of meetings with harmed and bereaved families from across the country to hear about their experiences of maternity care and the wider healthcare system, most recently meeting with families failed by maternity care at Leeds Teaching Hospital Trust. He has also twice visited Nottingham to meet with families involved in the ongoing independent review of maternity services at Nottingham University Hospitals NHS Trust.The Hon. Member and other local constituency MPs were invited to a meeting. However, the Hon. Member was unable to attend.The Secretary of State has committed to ensuring the voices of women and families are at the heart of improving standards.

What steps his Department is taking to provide funding for (a) adult and (b) children’s hospices for the next ten years.

We are supporting the hospice sector with a £100 million capital funding boost for eligible adult and children’s hospices in England to ensure they have the best physical environment for care. We are also providing £26 million of revenue funding to support children and young people’s hospices for 2025/26. This is a continuation of the funding which until recently was known as the children and young people’s hospice grant. In 2024/25 and 2025/26, this funding was administered via integrated care boards in line with National Health Service devolution.The Department and NHS England are currently looking at how to improve the access, quality and sustainability of all-age palliative and end of life care in line with the 10-Year Health Plan. Officials will present further proposals to Ministers over the coming months, outlining the drivers and incentives that are required in palliative care and end of life care to enable the shift from hospital to community, including as part of neighbourhood health teams.

What recent discussions he has had with hospice providers on the increase in financial pressures they face.

We are supporting the hospice sector with a £100 million capital funding boost for eligible adult and children’s hospices in England to ensure they have the best physical environment for care. We are also providing £26 million of revenue funding to support children and young people’s hospices for 2025/26. This is a continuation of the funding which until recently was known as the children and young people’s hospice grant. In 2024/25 and 2025/26, this funding was administered via integrated care boards in line with National Health Service devolution.The Department and NHS England are looking at how to improve the access, quality, and sustainability of all-age palliative care and end of life care, including hospice provision, in line with the 10-Year Health Plan.The Government and the NHS will closely monitor the shift towards the strategic commissioning of palliative care and end of life care services, including from hospices, to ensure that the future state of services reduces variation in access and quality, although some variation may be appropriate to reflect both innovation and the needs of local populations.Officials will present further proposals to ministers over the coming months, outlining how to operationalise the required changes to palliative care and end of life care to enable the shift from hospital to community, including as part of neighbourhood health teams. Hospices will play an important role in that shift.The Department and NHS England will continue to proactively engage with our stakeholders, including the voluntary sector and independent hospices, on an ongoing basis, to understand the issues and pressures they face.

What recent assessment he has made of the adequacy of the funding model for hospices in England.

We are supporting the hospice sector with a £100 million capital funding boost for eligible adult and children’s hospices in England to ensure they have the best physical environment for care. We are also providing £26 million of revenue funding to support children and young people’s hospices for 2025/26. This is a continuation of the funding which until recently was known as the children and young people’s hospice grant. In 2024/25 and 2025/26, this funding was administered via integrated care boards in line with National Health Service devolution.The Department and NHS England are looking at how to improve the access, quality, and sustainability of all-age palliative care and end of life care, including hospice provision, in line with the 10-Year Health Plan.The Government and the NHS will closely monitor the shift towards the strategic commissioning of palliative care and end of life care services, including from hospices, to ensure that the future state of services reduces variation in access and quality, although some variation may be appropriate to reflect both innovation and the needs of local populations.Officials will present further proposals to ministers over the coming months, outlining how to operationalise the required changes to palliative care and end of life care to enable the shift from hospital to community, including as part of neighbourhood health teams. Hospices will play an important role in that shift.The Department and NHS England will continue to proactively engage with our stakeholders, including the voluntary sector and independent hospices, on an ongoing basis, to understand the issues and pressures they face.

What steps he is taking to support hospices with the increase in (a) the level of inflation and (b) staffing costs and (c) energy prices.

We are supporting the hospice sector with a £100 million capital funding boost for eligible adult and children’s hospices in England to ensure they have the best physical environment for care. We are also providing £26 million of revenue funding to support children and young people’s hospices for 2025/26. This is a continuation of the funding which until recently was known as the children and young people’s hospice grant. In 2024/25 and 2025/26, this funding was administered via integrated care boards in line with National Health Service devolution.The Department and NHS England are looking at how to improve the access, quality, and sustainability of all-age palliative care and end of life care, including hospice provision, in line with the 10-Year Health Plan.The Government and the NHS will closely monitor the shift towards the strategic commissioning of palliative care and end of life care services, including from hospices, to ensure that the future state of services reduces variation in access and quality, although some variation may be appropriate to reflect both innovation and the needs of local populations.Officials will present further proposals to ministers over the coming months, outlining how to operationalise the required changes to palliative care and end of life care to enable the shift from hospital to community, including as part of neighbourhood health teams. Hospices will play an important role in that shift.The Department and NHS England will continue to proactively engage with our stakeholders, including the voluntary sector and independent hospices, on an ongoing basis, to understand the issues and pressures they face.

What steps his Department is taking to help reduce waiting times for radiotherapy treatment.

Radiotherapy is vital in cancer care, and it remains a key priority for the Government to reduce radiotherapy waiting times and provide the highest quality of treatment available. This is why the Government has invested £70 million of central funding on 28 new radiotherapy machines across the country to replace older machines. These new machines are more efficient meaning that more patients can be seen more quickly. This will help to reduce waiting times for cancer patients.

What recent discussions he has had with (a) NICE and (b) NHS England on the (i) availability of and (ii) access to new treatments for patients with secondary breast cancer.

Ministers and Department officials have regular discussions with the National Institute for Health and Care Excellence (NICE) and NHS England on a range of issues including access to new treatments.NICE makes recommendations for the National Health Service on whether all new licensed medicines, including medicines for secondary breast cancer, should be routinely funded by the NHS. NHS England funds all NICE-recommended treatments for breast cancer with the funding available from the point of a positive draft NICE decision. Since 2018, NICE has recommended all but one of the treatments for breast cancer that it has assessed, including treatments for advanced breast cancer, such as Truqap and Korserdu, which are now available to eligible NHS patients. NICE recommended treatments are available to NHS patients in line with NICE’s recommendations.

For what purposes their Department has used artificial intelligence in the last year.

The Department has developed, as proof-of-concept projects, artificial intelligence (AI) enabled summarisation tools that have been used to analyse and draw out key themes from free text and survey responses, as well as to summarise academic journals and parliamentary speeches. AI-enabled topic modelling tools have also been used to label text data source results and to group together similar responses in consultation analysis.In addition, a generative AI tool, Microsoft 365 Copilot, is currently being trialled by the Department’s staff in anticipation of a Department wide roll out of the tool in October 2025.The Department regularly reviews the usage of AI to maximise productivity benefits for staff and the public.

How many cases of tuberculosis have been recorded in each of the last 10 years.

The number of people notified with tuberculosis in England over the last 10 years is published as part of the UK Health Security Agency’s tuberculosis annual report. The latest annual report, released in December 2024, includes data up to the end of 2023. The full report and data tables are available at the following link:https://www.gov.uk/government/publications/tuberculosis-in-england-2024-reportThe following table shows tuberculosis notifications for the previous 10 years:YearTotal number of notifications20146,47320155,73420165,62120175,06620184,61020194,70420204,12420214,40720224,37520234,85520245,480Note: data for 2024 is provisional and was included in the quarterly report for quarter four of 2024, which is available at the following link: https://www.gov.uk/government/statistics/tuberculosis-in-england-national-quarterly-reports/national-quarterly-report-of-tuberculosis-in-england-quarter-4-2024-provisional-data

If he will make provision for the early diagnosis of blood cancers in the National Cancer Plan.

It is a priority for the Government to support the National Health Service to diagnose cancer, including blood cancers such as myeloma, as well as other unstageable cancers, as early and quickly as possible, and to treat it faster, in order to improve outcomes.To tackle late diagnoses of blood cancers, the NHS is implementing non-specific symptom pathways for patients who present with symptoms such as weight loss and fatigue, which do not clearly align to a tumour type. Blood cancers are one of the most common cancer types diagnosed through these pathways.We will get the NHS diagnosing blood cancer earlier and treating it faster, and we will support the NHS to increase capacity to meet the demand for diagnostic services through investment, including for magnetic resonance imaging and computed tomography scanners.The National Cancer Plan will include further details on how we will improve outcomes for cancer patients, including speeding up diagnosis and treatment, ensuring patients have access to the latest treatments and technology, and ultimately drive up this country’s cancer survival rates.

What steps he is taking to help reduce the number of GP visits before diagnosis for patients with blood cancer.

The Department continues to support the National Health Service to diagnose and treat cancer as early and fast as possible. However, because of the state of the NHS this Government inherited, we recognise that patients with cancers with non-specific symptoms such as blood cancer, are waiting too long for diagnosis and subsequent treatment.To help prevent multiple general practice (GP) visits and emergency setting diagnoses of blood cancers, the NHS is implementing non-specific symptom (NSS) pathways for patients who present with symptoms such as weight loss and fatigue, which do not clearly align to a tumour type. There are currently 115 NSS services operating in England with blood cancers being one of the most common cancer types diagnosed through these pathways.The Department recently hosted a roundtable with industry experts to discuss the proposal for Jess’s Rule. Outcomes and further steps will be confirmed in due course.

What steps he is taking with the Food Standards Agency to help increase levels of public awareness of dangerous food product recalls.

Food recalls and allergy alerts often receive a high level of engagement depending on the scale and risk associated with each recall. It is the responsibility of businesses to reach the public through displaying in-store notices and notifying consumers through their own communication channels. The Food Standards Agency (FSA) amplifies recalls to reach a wider audience and those most vulnerable.The FSA works with national and regional media outlets, and shares recall information across its social media channels. This strategy achieves regular national coverage, plus targeted regional coverage. Targeted advertising campaigns on social media encourage the public to sign up for the food alerts and recalls service. Promoting the alerts and recall service is a key objective of our current business campaign. Safer food means better business, which aims to support small and micro businesses in protecting their customers.Targeted partnerships with healthcare providers, charities and organisations that represent vulnerable consumers facilitate direct access to those who are most at risk to food borne diseases. This includes immunocompromised groups or those living with an allergy.The FSA carried out a key review of the recall process in 2017 with the strengthened processes in place by 2019, and an evaluation of improvements carried out in 2022. At the heart of this work is making sure that as much as possible the system works smoothly across all those involved so that consumers are aware when unsafe foods are recalled.

What recent steps he has taken to improve access to new treatments for patients with secondary breast cancer.

The Department is committed to ensuring that the National Health Service diagnoses cancer earlier and treats it faster so that more patients, including those with breast cancer, survive.The National Institute for Health and Care Excellence (NICE) makes recommendations for the NHS on whether new licensed medicines should be routinely funded by the NHS based on their costs and benefits. Cancer medicines are eligible for funding from the Cancer Drugs Fund from the point of a positive NICE recommendation. Since January 2022, NICE has recommended all but one of the treatments for breast cancer that it has assessed, including treatments for secondary breast cancer such as Truqap and Korserdu, which are now available to eligible NHS patients.The National Cancer Plan for England will be published later this year and will set out further details on how we will improve outcomes for all cancer patients, including those with secondary breast cancer. The National Cancer Plan will have patients at its heart and will cover the entirety of the cancer pathway, from referral and diagnosis to treatment and aftercare.